REMINGTON, Va. - s4story -- Many Faces of Moebius Syndrome Announces 15th Anniversary of Moebius Syndrome Awareness Day

Global Campaign Kicks Off for January 24, 2026 — Wear Purple, Tell Your Story, Request Proclamations

Many Faces of Moebius Syndrome (MFOMS), the world's largest all-volunteer Moebius organization, proudly announces the 15th anniversary of Moebius Syndrome Awareness Day (MSAD), set for January 24, 2026. Since its inception in 2011, MSAD has united individuals, families, and communities worldwide to raise awareness, reduce stigma, and celebrate the voices of people with Moebius syndrome.

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A Legacy of Awareness

MSAD was founded by MFOMS co-leaders Tim Smith (Virginia, USA) and Gavin Fouché (Cape Town, South Africa), in collaboration with community parent Donnie Downs. The inaugural 2011 observance drew global media attention, with tens of thousands visiting the MFOMS website in 24 hours. What began as a single day has grown into a global movement of pride, acceptance, and storytelling.

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Why 2026 Matters

The 15th anniversary is a milestone to reflect, renew, and expand. For 2026, MFOMS invites the Moebius community to unite under two subthemes:

1. Proclamation Drive — MFOMS provides U.S. and international toolkits to help members request proclamations recognizing January 24 as MSAD.

2. Media Storytelling Initiative — A media-pitch toolkit and this press release help participants share personal stories with local outlets.

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MFOMS Campaign Commitments

• Distribute the official MSAD 2026 press release and include it in both toolkits
• Launch weekly social and newsletter campaigns
• Provide templates, guidance, and direct support
• Monitor coverage and amplify participant stories

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How to Participate

• Wear purple on January 24, 2026
• Request a proclamation from your mayor, governor, or local leader
• Share your Moebius story with local media
• Engage online through MFOMS' social channels
• Visit https://tinyurl.com/msad2026
• Visit https://mfoms.org

Acknowledgment & Collaboration

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MFOMS honors the contributions of other Moebius organizations, including the Moebius Syndrome Foundation (MSF), in supporting families and awareness worldwide. Collaboration is welcomed, while MFOMS continues to steward MSAD's 15-year legacy as its founding organization.

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About MFOMS

Many Faces of Moebius Syndrome (MFOMS) is an all-volunteer global community platform dedicated to amplifying the voices and stories of those living with Moebius syndrome. Through advocacy, awareness campaigns, and storytelling initiatives, MFOMS connects families worldwide and leads the annual observance of Moebius Syndrome Awareness Day.

Contact: Tim Smith — tim@mfoms.org