WASHINGTON, Sept. 5, 2025 ~ As World Duchenne Awareness Day approaches on September 7th, Parent Project Muscular Dystrophy (PPMD) is gearing up to join forces with other Duchenne-specific organizations from around the world. This global initiative, led by the World Duchenne Organization, aims to raise awareness about Duchenne and Becker muscular dystrophy and has gained significant recognition with the United Nations officially recognizing the day.

To kick off the celebrations, PPMD has organized Bad Shirt Friday as part of their World Duchenne Awareness Day activities. Families, friends, and allies are encouraged to wear their most outrageous shirts and share photos on social media using #BadShirtFriday. This fun event not only raises awareness but also celebrates the spirit of the Duchenne and Becker community. Participants are also encouraged to make a donation to support PPMD's efforts.

PPMD's Founding President, Pat Furlong, emphasizes the importance of families in this year's theme for World Duchenne Awareness Day: Family: The Heart of Care. "Bad Shirt Friday is a chance to show that families are not only at the center of care but also at the center of this effort to raise awareness for Duchenne and Becker muscular dystrophy," she said. Whether you're a parent, grandparent, sibling, relative, friend, or ally, your voice – and your shirt – can help amplify the message.

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In addition to Bad Shirt Friday, PPMD attended a special event at the United Nations in New York today for the premiere of a community-produced global documentary. The film focuses on families and their journeys with Duchenne and Becker muscular dystrophy and highlights how family serves as a source of resilience and support.

To help individuals and families prepare for World Duchenne Awareness Day, PPMD has created a Family Activation Guide filled with resources such as social media graphics, sample posts and captions, activities, and ideas to help spread awareness online and in communities. The guide can be accessed on PPMD's website.

If you are interested in learning more about World Duchenne Awareness Day and how you can participate, please visit PPMD's website. Together, we can raise awareness and support for those affected by Duchenne and Becker muscular dystrophy.

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